My Story of Hyperemesis: Saturday 13 weeks...grandpas passing

Saturday, April 18, 2009

Saturday 13 weeks...grandpas passing

I wish this post was going to be more about hyperemesis, since that is what this blog is about but since i had an event in my life yesterday i thought i would share.

My day started off with my nurse coming and checking my picc and changing my dressings. I have a slight fever i have to keep my eye on but beside that it all looks good. my kidneys hurt so i wonder if i am getting a kidney infection. i am staying on my IV's and zofran though I don't want to because i am tired of it.

I was going to go see my grandfather who was dying today (Saturday) but decided to go yesterday. Brad and Brother Crockett gave him a blessing at 3pm, it was beautiful. Lizzie sang, You are my Sunshine and I am A Child of God. Lizzie was great, Emmie was scared to death. Brad and the girls left and I stayed until about 7:30pm. The home hospice nurse was going to be there all night and my aunt was staying all night as well. The nurse seemed very confident he would make it 48 hours to a week. So I was going to go back today. We got the call somewhere in the 10pm hour that he had passed and that I could go see his body if I wanted to. I chose not to. When my uncle told me he passed the first thing I said was, That was Fast! That was the only thing that came to mind. If I would have known last night he would pass I would have stayed all night, but hindsight is 20/20. I have no regrets. As I sat by his bed I did not know what to say to him that he didn't already know. He knew I loved him, he knew he was the best grandpa, he knew I thought the world of him, he knew he was my best friend, so what do you say? No regrets that is the way to go. I have not cried, I am not sure that I am sad; he is where he should be. I think of him in heaven and i get this overwhelming happy feeling. He is now happy! Everyone thinks I should be upset, and if another person asks if I am really alright and not faking, I might him them. LOL!!!!1 I am fine, a little tired just from everything but at peace grandpa is where he should be.

Sorry this post is not about hyperemesis, but life happens while you have hyperemesis!

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Causes

The cause of HG is unknown. The leading theories state that it is an adverse reaction to the hormonal changes of pregnancy. In particular, Hyperemesis may be due to raised levels of beta HCG as it is more common in multiple pregnancies (though I never had multiples). It is thought that estrogen produces nausea and regurgitation of stomach acids in some women. A recent study gives "preliminary evidence" that there may be a genetic component (the only other person in my family who has hyperemsis is my cousin). More on causes and theories go to: http://www.helpher.org/hyperemesis-gravidarum/theories-research/index.php

Symptoms

When HG is severe and/or inadequately treated, it may result in:

Loss of 5% or more of pre-pregnancy body weight
Dehydration, causing ketosis, and constipation
Nutritional deficiencies
Metabolic imbalances
Altered sense of taste
Sensitivity of the brain to motion
Food leaving the stomach more slowly
Rapidly changing hormone levels during pregnancy
Stomach contents moving back up from the stomach
Physical and emotional stress of pregnancy on the body
Subconjunctival hemorrhage (broken blood vessels in the eyes)
Difficulty with daily activities
Hallucinations

Some women with HG lose as much as 30% of their body weight. Many sufferers of HG are extremely sensitive to odors in their environment; certain smells may exacerbate symptoms.

As compared to morning sickness, HG tends to begin somewhat earlier in the pregnancy and last significantly longer (my last until 20 weeks or half way). While most women will experience near-complete relief of morning sickness symptoms near the beginning of their second trimester, some sufferers of HG will experience severe symptoms until they give birth to their baby, and sometimes even after giving birth.

Treatment

Because of the potential for severe dehydration and other complications, HG is in general treated as a medical emergency. Treatment of HG may include antiemetic medications and intravenous rehydration. If medication and IV hydration are insufficient, nutritional support may be required.

Management of HG can be complicated because not all women respond to treatment. In some instances, women with HG may be able to avoid hospitalization by eating a special diet of clear liquids and bland food rich in carbohydrates,and eating before rising in the morning; while these may be of some assistance, they are unlikely to resolve the disorder on their own. Hypnosis has relieved symptoms in some cases, though the majority of women do not respond to this measure.Wristbands used for motion sickness and seasickness have been shown by one study to be effective in treating some cases of HG, but not others; these are worn around the wrist at a traditional acupuncture point, 3 finger-widths from the joint, and are available at many pharmacies.There is evidence that ginger may be effective in treating pregnancy-related nausea; however, in general this is ineffective in cases of HG. Nothing but medication and hydration have ever helped me personally.

IV hydration - this is what i do

IV hydration often includes supplementation of electrolytes as persistent vomiting frequently leads to a deficiency. A and B vitamins are depleted within two weeks, so extended malnutrition indicates a need for evaluation and supplementation. In addition, mineral levels should be monitored and supplemented; of particular concern are sodium and potassium.

After IV rehydration is completed, patients in general progress to frequent small liquid or bland meals. After rehydration, treatment focuses on managing symptoms to allow normal intake of food. However, cycles of hydration and dehydration can occur, making continuing care necessary. Home care is available in the form of a PICC line for hydration and nutrition (called total parenteral nutrition). Home treatment is often less expensive than long-term and/or repeated hospital stays.

Medications

While no medication is considered completely risk-free for use during pregnancy, there are several that are commonly used to treat HG and are believed to be safe.

The standard treatment in most of the world is Bendectin (also sold under the trademark name Diclectin), a combination of doxylamine succinate and vitamin B6. However, due to a series of birth-defect lawsuits in the United States against its maker, Merrill Dow, Bendectin is not currently on the market in the U.S. (None of the lawsuits were successful, and numerous independent studies and the Food and Drug Administration (FDA) have concluded that Bendectin does not cause birth defects.) Its component ingredients are available over-the-counter (doxylamine succinate is the active ingredient in many sleep medications), and some doctors will recommend this treatment to their patients.

Antiemetic drugs, especially ondansetron (Zofran), are effective in many women. The major drawback of ondansetron has been its cost. In severe cases of HG, the Zofran pump may be more effective than tablets. Zofran is also available in ODT (oral disintegrating tablet), which can be easier for women who have trouble swallowing due to the nausea. Promethazine (Phenergan) has been shown to be safe, at least in rats and may be used during pregnancy with minimal/no side-effects. Metoclopramide is sometimes used in conjunction with antiemetic drugs; however, it has a somewhat higher incidence of side-effects. Other medications less commonly used to treat HG include Marinol, corticosteroids, and antihistamines.

Other medications that are frequently prescribed for HG are Compazine, Tigan, Phenergan, and Reglan. These can be given orally or intraveneously, or administered as a rectal suppository. They are considered safe for use during pregnancy.^[15]

Nutritional support

Women not responding to IV rehydration and medication may require nutritional support. Patients might receive parenteral nutrition (intravenous feeding via a PICC line) or enteral nutrition (via a nasogastric tube or a nasojejunum tube).

Beyond Morning Sickness

BEYOND MORNING SICKNESS......I have read the best book on Hyperemesis and wanted all of the people who read my blog to go out and get this book and read it. You can find the book on amazon.com or go to the author's web page at www.beyondmorningsickness.com it is a wonderful book on hyperemesis. The author has also written a children's book about hyperemesis titled, Mama Has Hyperemesis, and my children loved it! The web-site also offers a great support system and other woman who have gone through hyperemesis!

Spiritual Connection!

I Thank my Heavenly Father every day for the beautiful children and family I have. I know that it is through God the Father, Jesus Christ, and the Holy Ghost that I made it through my 3 pregnancies. I know they have a plan for me, I know they love me and watch over me. Through Prayer, scripture study, and church they make it possible for me to survive hyperemesis. You need to be spiritual strong to survive hyperemesis, and the Lord will provide your way. I am happy to be a member of The Church Of Jesus Christ Of Latter Day Saints.

Hyperemesis does NOT equal abortion!

I have come across many web-sites for women with Hyperemesis that are pro-choice. Some even promote and support women who have hyperemesis to terminate the baby. This upsets me. There are positive treatment options for hyperemesis and women, children and families deserve better than abortion. I do not believe women, and families should choose abortion when there are other options to help with hyperemesis. I hope this blog helps women to choose to keep their baby because if I can do it, anyone can do it! Let us support one another!